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02/06/2016
Funding For CF Drug Rejected
Funding for the cystic fibrosis drug Orkambi has been rejected by the government.
Fianna Fáil TD Darragh O'Brien said he was "bitterly disappointed" with the decision and is calling on Vertex Pharmaceuticals to reduce the price of the drug.
He said: "This drug was approved by the EU Medicines Agency some time ago and has proven to be of major benefit for cystic fibrosis sufferers. Furthermore, it has been shown to extend life expectancy and significantly improve quality of life for those who suffer from the disease.
"More people are living with cystic fibrosis than ever before. About 500 people with CF have the potential to benefit from the implementation of Orkambi in Ireland."
He is also calling on the Government to clarify if it will enter into further negotiations.
(CD/JP)
Fianna Fáil TD Darragh O'Brien said he was "bitterly disappointed" with the decision and is calling on Vertex Pharmaceuticals to reduce the price of the drug.
He said: "This drug was approved by the EU Medicines Agency some time ago and has proven to be of major benefit for cystic fibrosis sufferers. Furthermore, it has been shown to extend life expectancy and significantly improve quality of life for those who suffer from the disease.
"More people are living with cystic fibrosis than ever before. About 500 people with CF have the potential to benefit from the implementation of Orkambi in Ireland."
He is also calling on the Government to clarify if it will enter into further negotiations.
(CD/JP)
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Ireland WeatherThis Evening and Tonight:It will be cloudy with a spell of heavy rain pushing south through late evening and the early hours, soon followed by some clear spells. Minimum temperature 6 °C.
